Showing posts from May, 2010

Patience and chronic fatigue

Patience is a word that comes up a lot when you're living with chronic fatigue. There's a lot of situations to practice it - waiting for a diagnosis, waiting for an appointment, waiting at the appointment (I've had several waits lasting multiple, multiple hours), waiting for the latest difficulty to wear off, doing pacing, waiting to do something you enjoy but can't because you've run out of time, and so on. Sometimes time runs very slowly. Now think of yourself as a patient person and this is the opportunity to practice it, live it, understand it and totally comprehend it. There is a certain nobility to be extracted from it.

Chronic fatigue syndrome

Don't expect miracles. Have a ten year plan in mind.

Chronic fatigue syndrome - one thing to remember

There is no cure. There might be days when you feel cured , indeed I have the delusion of wellness when I ride my bicycle. I feel as clear as a bell as I coast along and I start planning my new life 'now that I feel better', then when I dismount I feel the life drain out of me and I realise that I have been fooled again. Now, as I ride along I try to remind myself that it is only 'bicycle wellness' and that there is no cure.

No cure also means that no-one knows what causes it. So there's no need to go through the trouble of beating yourself up with statements like 'if only I'd have lived my life differently', 'I should have done this', 'I shouldn't have done that', 'I should have realised', 'I'm to blame'. Forget all that, no-one knows. Better to deal with the cards we've been dealt.

Living with CFS - four things I have found useful

I guess everyone experiences chronic fatigue in a different way. In the early days there's not much you can do apart from live through it, but then there comes a point where you know you need to start attempting to be yourself again. Four things that have helped me tremendously are:

1. Meditation. This has helped me in many ways and, of all the journeys in my life, this has been the most profoundly amazing and illuminating.
2. Yoga (gentle exercise). This ironed out the creases in my gnarled, stressed body.
3. Diet. Changing my diet to super healthy has been very difficult but it has given me a sense of well being.
4. Pacing. This has been my fall back survival strategy.

I'll no doubt be going into these in more detail at some point.